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Industry defends genetic testing regime

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The Financial Services Council (FSC) has defended limits included in proposals to change the way the industry handles genetic testing, following criticism from campaigners.

The FSC says consultation will begin on a moratorium to stop life insurers asking all applicants whether or not they have had a genetic test.

In Australia insurers cannot require a test, but there is a carveout in anti-discrimination law allowing them to ask about testing and refuse cover or increase premiums on the basis of adverse results.

This has led to fears some people will decide against potentially life-saving genetic tests because of the impact it could have on their insurance cover, and earlier this year a parliamentary inquiry called on the FSC to take action.

Under the proposed moratorium, all Australians can obtain up to $500,000 of life or total and permanent disability cover without having to disclose an adverse test result. There are also limits of $200,000 for trauma and $4000 a month for income protection.

But Jane Tiller, Ethical, Legal and Social Adviser in Public Health Genomics at Monash University, says the limits are too restrictive.

Ms Tiller, a founding member of the Australian Genetic Non-Discrimination Working Group, is also disappointed not to have been consulted about the proposed moratorium.

“In the UK the only limit is for Huntington’s disease,” she told insuranceNEWS.com.au.

“Here the limits are too low and they are not specific to any particular diseases. They cover absolutely everything.

“The limits are lower than they should be and we are disappointed we have not been consulted before now.”

An FSC spokesman told insuranceNEWS.com.au the limits are in line with other jurisdictions.

“The moratorium limits are in line with Germany and Switzerland, and significantly more than Holland and Sweden,” the spokesman said. “In all those countries, the limits apply to all tests. The UK is an outlier in this respect.

“The industry has looked carefully at international comparisons. The cost of the moratorium will need to be carefully managed by life insurers to ensure a balance between those who have genetic conditions and those who don’t.”

Under the moratorium, people seeking cover below the limits will not be asked about genetic testing, but those asking for higher cover may be.

If they are declined cover as a result, they can reapply for the lower cover with that insurer or another. The moratorium will start on July 1 next year and continue for five years, with a review planned for 2022.